This post was updated on July 26th, 2022
By Kym Campbell, BSc. | Updated July 26th, 2022
There’s often a lack of adequate information and support for women with PCOS. Polycystic ovary syndrome support groups can be vital for meeting this unmet need.
Depending on the group, you can find a range of evidence-based information and valuable peer support. The right PCOS support group is great for developing the confidence you need to better manage your condition. Learning from other women’s experiences gives you greater agency over your healthcare. A good group can also help you source quality information.
With this in mind, here are my top 6 support groups for women with PCOS.
1. PCOS Diet Support Group & 30-Day Challenge
This is my PCOS support Facebook group, so of course, I think it’s the best.
But in all seriousness, it’s also the largest PCOS group on the internet. At the time of writing, there were 148,000 members. This unique group focuses on lifestyle interventions, with a heavy lean towards dietary changes.
There are a couple of reasons why the group is so popular. First, I host a free 30-Day PCOS Diet Challenge each quarter within this Facebook group. This live event has introduced hundreds of thousands of women to a PCOS diet. Participants receive weekly meal plans, recipes, shopping lists, and nutritional video lessons. All within a supportive group environment.
The culture of this group also makes it uniquely distinctive. Moderators spend a lot of time cultivating supportive conversations and a positive group tone. Whether you’re looking for help with a recipe, or an ingredient recommendation, you can be sure to get a bunch of helpful responses. We get what you’re going through and we’ve got your back.
My PCOS Diet Support & 30-Day Challenge group has also spawned a few smaller offshoots. These include an exclusive group for members of my Beat PCOS 10-Week Program. I also host another support group for my monthly meal planning service subscribers.
2. PCOS (Facebook)
The Facebook group “PCOS” is an inclusive, non-gender specific group that welcomes everyone. This large group is about, “support, information, advice, and guidance.” At the time of writing, they had about 82,000 members. Topics in this group are more general. They include discussions on infertility, anxiety, and exercise.
3. PCOS Support Group (Facebook)
“PCOS Support Group” is another large PCOS Facebook group. This group was started by Cassie Cabrera in 2016. Their purpose is to, “let women express themselves, support, and be free to speak about their experiences with PCOS without being reprimanded by an admin or another member.” Photos, videos, recipes, and stories are welcome. Links, medical advice, and advertisements to other groups are not allowed.
4. PCOS Challenge
PCOS Challenge: The National Polycystic Ovary Syndrome Association is the largest advocacy organization for PCOS globally. Its mission is to, “raise public awareness, help women overcome their symptoms and reduce their risk for related conditions.” This support group provides a lot of PCOS-related information. This spans original television, radio, and magazine content.
5. PCOS Awareness Association
The PCOS Awareness Association (PCOSAA) is a US-based non-profit organization. PCOSAA, “allows and enables people to understand what PCOS is, provides resources regarding it, and creates public awareness about it.” They are an active organization that hosts many live, online events.
6. My PCOS Team
My PCOS team is an alternative social network for women with PCOS. They are an independent, venture-capital-backed startup based in San Francisco. All the features on their site are, “designed with one goal in mind; to connect you with others who have been in your shoes.”
Ready To Take The Next Step?
Since 2010, Kym Campbell has used evidence-based diet and lifestyle interventions to manage her PCOS. After getting her symptoms under control and falling pregnant naturally, Kym now advocates for dietary change as part of any PCOS treatment plan. Combining rigorous science and clinical advice with a pragmatic approach to habit change, Kym is on a mission to show other women how to take back control of their health and fertility. Read more about Kym and her team here.